الوضع الوبائي لمرض الهيموفيليا في بغداد - العراق 2016 == Epidemiological Profile of Hemophilia in Baghdad - Iraq, 2016
Author name:
كمال عبد الرزاق كاظم
Supervisor name:
فارس حسن اللامي
General topic:
Medicine
Specific topic:
Applied Epidemiology
Degree:
Higher Diploma
University:
University of Baghdad - Faculty Of Medicine
Language:
English
University location:
Baghdad
First pages:
19T1442 - p.pdf
Abstract:
Background : Hemophilia is an X - linked bleeding disorder that affects males mainly. Globally, there are about 400,000 people with hemophilia and only 25%of them receive adequate treatment. There is insufficient epidemiological data on hemophilia in Iraq, so this study was conducted to estimate the prevalence, incidence and other epidemiological characteristics of hemophilia patients in Baghdad, 2016.Methods : A cross sectional study was conducted by reviewing all records of hemophilia patients for 2016 that retrieved through visiting all hemophilia centers in Baghdad. Corresponding population data of Baghdad was obtained from the Ministry of Planning.Results : The total number of the registered hemophilia patients in Baghdad centers who are residents of Baghdad was 654. The current prevalence of hemophilia was 7.7/100,000 population and it was 3.6/100,000 population in 2007. The current incidence of hemophilia was 16.3/100,000 livebirths and it was 8.4/100,000 livebirths in 2007. Severe hemophilia represented 63.4% from all types and the male patients represented 97.1%. The prevalence of HCV was 22.9%, for HBV was 0.9% and 0.2% for HIV. Inhibitors werepositive in 11.6% of hemophilia patients. Target joints found among 45.1% of patients. About 27% of patients were on prophylactic therapy. Only one death was recorded among hemophilia patients in Baghdad, 2016.Conclusions : The prevalence and incidence of hemophilia in Baghdad was doubled in 10 years' period. We recommended establishing an electronic national registry to have a perfect database for hemophilia and enhancing the prophylactic treatment.
